Yenidoğan ve Etik
Özet
Referanslar
WHO. Newborn health. https://www.who.int/health-topics/newborn-health#tab=tab_2 [Erişim tarihi: 6 Haziran 2023].
CDC. Newborn screening. https://www.cdc.gov/newbornscreening/index.html [Erişim tarihi: 6 Haziran 2023].
NICHD. Informed consent for newborn screening & future uses of tissue samples. https://www.nichd.nih.gov/publications/pubs/pku/sub13 [Erişim tarihi: 6 Haziran 2023].
Grob R. Testing baby: the transformation of newborn screening, parenting, and policymaking. New Jersey: Rutgers University Press; 2011.
Grob R, Roberts S, Timmermans S. Families’ experiences with newborn screening: a critical source of evidence. Hastings Center Report. 2018;48(Suppl 1): S29–S31.
Fabie NAV, Pappas KB, Feldman GL. The current state of newborn screening in the United States. Pediatric Clinics. 2019;66(2): 369–386.
Timmermans S, Buchbinder M. Saving babies? The consequences of newborn genetic screening. Chicago: University of Chicago Press; 2019.
Türkiye Cumhuriyeti Sağlık Bakanlığı. Yenidoğan Metabolik ve Endokrin Hastalık Tarama Programı (NTP). https://hsgmdestek.saglik.gov.tr/tr/cocukergen-tp-liste/yenidogan_tarama_programi.html [Erişim tarihi: 12 Haziran 2023].
Shi CY, Wei W, Lyu LJ, Wang Q. Umbilical cord blood application analysis of Guangdong Cord Blood Bank. Chin Med J (Engl). 2020;133(16): 1997–1998. doi:10.1097/CM9.0000000000000924.
Roh EY, Oh S, Yoon JH, Kim BJ, et al. Umbilical cord blood units cryopreserved in the public cord blood bank: a breakthrough in iPSC haplobanking? Cell Transplant. 2020;:963689720926151. doi:10.1177/0963689720926151.
American Medical Association. AMA Code of Medical Ethics 6.1.5: Umbilical Cord Blood Banking. https://code-medical-ethics.ama-assn.org/sites/default/files/2022-08/6.1.5.pdf [Erişim tarihi: 15 Haziran 2023].
Martin A, Badell M. Umbilical cord blood banking. Topics in Obstetrics & Gynecology. 2014;34(15): 1–5.
Gerdfaramarzi MS, Bazmi S, Kiani M, Afshar L, Fadavi M, Enjoo S. Ethical challenges of cord blood banks: a scoping review. Journal of Medicine and Life. 2022;15(6): 735.
American College of Obstetricians and Gynecologists. Cord blood banking. https://www.acog.org/womens-health/faqs/cord-bloodbanking [Erişim tarihi: 15 Haziran 2023].
American Academy of Pediatrics. Cord blood banking for potential future transplantation. https://publications.aap.org/pediatrics/article/140/5/e20172695/37866/Cord-Blood-Banking-for-Potential-Future [Erişim tarihi: 18 Haziran 2023].
American Society for Blood and Marrow Transplantation. ASBMT adopts policy on cord blood registries. https://www.astctjournal.org/article/S1083-8791(05)00231-4/fulltext [Erişim tarihi: 18 Haziran 2023].
Sanchez-Petitto G, Rezvani K, Daher M, Rafei H, Kebriaei P, Shpall EJ, Olson A. Umbilical cord blood transplantation: connecting its origin to its future. Stem Cells Transl Med. 2023;12(2): 55–71.
Dündar T, Aksu H. Kordon kanı bankacılığı ve etik. Turkiye Klinikleri Journal of Medical Ethics-Law & History. 2019;27(1).
Kattwinkel J, Perlman JM, et al. American Heart Association guidelines for cardiopulmonary resuscitation and emergency cardiovascular care, neonatal resuscitation. Circulation. 2010;122(Suppl 3): S909–S919.
Wyckoff MH, Aziz K, et al. American Heart Association Guidelines Update for Cardiopulmonary Resuscitation and Emergency Cardiovascular Care, Neonatal Resuscitation. Circulation. 2015;132(Suppl 2): S543–S560.
Wyckoff MH, Wyllie J, et al. Neonatal life support: 2020 International consensus on cardiopulmonary resuscitation and emergency cardiovascular care science with treatment recommendations. Circulation. 2020;142(Suppl 1): S185–S221.
Aziz K, Lee HC, Escobedo MB. Part 5: Neonatal resuscitation 2020 American Heart Association guidelines. Pediatrics. 2020. doi:10.1542/peds.2020-038505E.
Opole IO, Deep NN, Sulmasy LS. On the ethics of NRP and the American College of Physicians NRP statement. Am J Transplant. 2022;22(6): 1725–1726.
Ennis BJ, Reed DJ, Lantos JD. Current controversies in neonatal resuscitation. Semin Perinatol. 2022;:151627.
Türk Neonataloji Derneği. Doğum Salonu Yönetimi Rehberi 2021 Güncellemesi. https://www.neonatology.org.tr/storage/2022/01/Dogum-Salonu-Yonetimi-Rehberi-2021.pdf [Erişim tarihi: 18 Haziran 2023].
Kukora SK, Boss RD. Values-based shared decision-making in the antenatal period. Semin Fetal Neonatal Med. 2018;23: 17–24.
Carey JC. Management of children with the trisomy 18 and trisomy 13 syndromes: is there a shift in the paradigm of care? Am J Perinatol. 2021;38: 1122–1125.
Kverneland LS, Kramer P, Ovroutski S. Five decades of the Fontan operation: a systematic review. Congenit Heart Dis. 2018;13: 181–193.
Glinianaia SV, Morris JK, Best KE, Santoro M, Coi A, Armaroli A, Rankin J. Long-term survival of children born with congenital anomalies. PLoS Med. 2020;17: e1003356.
Kosho T, Nakamura T, Kawame H, Baba A, Tamura M, Fukushima Y. Neonatal management of trisomy 18. Am J Med Genet A. 2006;140: 937–944.
Meyer RE, Liu G, Gilboa SM, et al. Survival of children with trisomy 13 and 18. Am J Med Genet A. 2016;170A: 825–837.
Schuler R, Bedei I, Oehmke F, Zimmer KP, Ehrhardt H. New challenges with treatment advances in newborn infants. Children. 2022;9(2): 236.
Ito Y. Perinatal care for severe congenital pulmonary airway malformation. In: Congenital Cystic Lung Disease. 2020. p. 39–47.
Janvier A, Farlow B, Barrington KJ. Parental hopes, interventions, and survival of neonates with trisomy 13 and trisomy 18. Am J Med Genet C Semin Med Genet. 2016;172: 279–287.
WHO. Guidelines on optimal feeding of low birth-weight infants in low- and middle-income countries. https://www.who.int/maternal_child_adolescent/documents/infant_feeding_low_bw/en/ [Erişim tarihi: 20 Haziran 2023].
UNICEF. The human milk bank saves the lives of our youngest. https://www.unicef.org/croatia/en/stories/human-milk-bank-saves-lives-our-youngest [Erişim tarihi: 20 Haziran 2023].
University of Zurich. IBME organizes the WHO co-sponsored “International Expert Consultation on the Donation and Use of Human Milk”. https://www.ibme.uzh.ch/en/Biomedical-ethics/NewsArchive/The-first-International-Expert-Consultation-on-the-Donationand-Use-of-Human-Milk-(Human-Milk-Banking)-,-Co-sponsored-by-theWHO-and-organized-by-the-IBME-has-taken-place-in-Zurich-on-July-8.-and-9.-2019.html [Erişim tarihi: 22 Haziran 2023].
Fang MT, Grummer-Strawn L, Maryuningsih Y, Biller-Andorno N. Human milk banks: a need for further evidence and guidance. Lancet Glob Health. 2021;9(2): e104–e105.
Alparslan Ö, Bozkurt G. Investigating the relationship between the opinions of mothers with infants in intensive care unit on human milk banking and their religious attitudes. Int Sci Voc Stud J. 2021;4(2): 90–96.
Espina-Jerez B, Romera-Álvarez L, de Dios-Aguado M, et al. Wet nurse or milk bank? Evolution in the model of human lactation. Int J Environ Res Public Health. 2022;19(15): 9742.
Keskindemirci G. Anne sütü bankacılığı. Osmangazi Tıp Dergisi. 2020: 30–34.
Referanslar
WHO. Newborn health. https://www.who.int/health-topics/newborn-health#tab=tab_2 [Erişim tarihi: 6 Haziran 2023].
CDC. Newborn screening. https://www.cdc.gov/newbornscreening/index.html [Erişim tarihi: 6 Haziran 2023].
NICHD. Informed consent for newborn screening & future uses of tissue samples. https://www.nichd.nih.gov/publications/pubs/pku/sub13 [Erişim tarihi: 6 Haziran 2023].
Grob R. Testing baby: the transformation of newborn screening, parenting, and policymaking. New Jersey: Rutgers University Press; 2011.
Grob R, Roberts S, Timmermans S. Families’ experiences with newborn screening: a critical source of evidence. Hastings Center Report. 2018;48(Suppl 1): S29–S31.
Fabie NAV, Pappas KB, Feldman GL. The current state of newborn screening in the United States. Pediatric Clinics. 2019;66(2): 369–386.
Timmermans S, Buchbinder M. Saving babies? The consequences of newborn genetic screening. Chicago: University of Chicago Press; 2019.
Türkiye Cumhuriyeti Sağlık Bakanlığı. Yenidoğan Metabolik ve Endokrin Hastalık Tarama Programı (NTP). https://hsgmdestek.saglik.gov.tr/tr/cocukergen-tp-liste/yenidogan_tarama_programi.html [Erişim tarihi: 12 Haziran 2023].
Shi CY, Wei W, Lyu LJ, Wang Q. Umbilical cord blood application analysis of Guangdong Cord Blood Bank. Chin Med J (Engl). 2020;133(16): 1997–1998. doi:10.1097/CM9.0000000000000924.
Roh EY, Oh S, Yoon JH, Kim BJ, et al. Umbilical cord blood units cryopreserved in the public cord blood bank: a breakthrough in iPSC haplobanking? Cell Transplant. 2020;:963689720926151. doi:10.1177/0963689720926151.
American Medical Association. AMA Code of Medical Ethics 6.1.5: Umbilical Cord Blood Banking. https://code-medical-ethics.ama-assn.org/sites/default/files/2022-08/6.1.5.pdf [Erişim tarihi: 15 Haziran 2023].
Martin A, Badell M. Umbilical cord blood banking. Topics in Obstetrics & Gynecology. 2014;34(15): 1–5.
Gerdfaramarzi MS, Bazmi S, Kiani M, Afshar L, Fadavi M, Enjoo S. Ethical challenges of cord blood banks: a scoping review. Journal of Medicine and Life. 2022;15(6): 735.
American College of Obstetricians and Gynecologists. Cord blood banking. https://www.acog.org/womens-health/faqs/cord-bloodbanking [Erişim tarihi: 15 Haziran 2023].
American Academy of Pediatrics. Cord blood banking for potential future transplantation. https://publications.aap.org/pediatrics/article/140/5/e20172695/37866/Cord-Blood-Banking-for-Potential-Future [Erişim tarihi: 18 Haziran 2023].
American Society for Blood and Marrow Transplantation. ASBMT adopts policy on cord blood registries. https://www.astctjournal.org/article/S1083-8791(05)00231-4/fulltext [Erişim tarihi: 18 Haziran 2023].
Sanchez-Petitto G, Rezvani K, Daher M, Rafei H, Kebriaei P, Shpall EJ, Olson A. Umbilical cord blood transplantation: connecting its origin to its future. Stem Cells Transl Med. 2023;12(2): 55–71.
Dündar T, Aksu H. Kordon kanı bankacılığı ve etik. Turkiye Klinikleri Journal of Medical Ethics-Law & History. 2019;27(1).
Kattwinkel J, Perlman JM, et al. American Heart Association guidelines for cardiopulmonary resuscitation and emergency cardiovascular care, neonatal resuscitation. Circulation. 2010;122(Suppl 3): S909–S919.
Wyckoff MH, Aziz K, et al. American Heart Association Guidelines Update for Cardiopulmonary Resuscitation and Emergency Cardiovascular Care, Neonatal Resuscitation. Circulation. 2015;132(Suppl 2): S543–S560.
Wyckoff MH, Wyllie J, et al. Neonatal life support: 2020 International consensus on cardiopulmonary resuscitation and emergency cardiovascular care science with treatment recommendations. Circulation. 2020;142(Suppl 1): S185–S221.
Aziz K, Lee HC, Escobedo MB. Part 5: Neonatal resuscitation 2020 American Heart Association guidelines. Pediatrics. 2020. doi:10.1542/peds.2020-038505E.
Opole IO, Deep NN, Sulmasy LS. On the ethics of NRP and the American College of Physicians NRP statement. Am J Transplant. 2022;22(6): 1725–1726.
Ennis BJ, Reed DJ, Lantos JD. Current controversies in neonatal resuscitation. Semin Perinatol. 2022;:151627.
Türk Neonataloji Derneği. Doğum Salonu Yönetimi Rehberi 2021 Güncellemesi. https://www.neonatology.org.tr/storage/2022/01/Dogum-Salonu-Yonetimi-Rehberi-2021.pdf [Erişim tarihi: 18 Haziran 2023].
Kukora SK, Boss RD. Values-based shared decision-making in the antenatal period. Semin Fetal Neonatal Med. 2018;23: 17–24.
Carey JC. Management of children with the trisomy 18 and trisomy 13 syndromes: is there a shift in the paradigm of care? Am J Perinatol. 2021;38: 1122–1125.
Kverneland LS, Kramer P, Ovroutski S. Five decades of the Fontan operation: a systematic review. Congenit Heart Dis. 2018;13: 181–193.
Glinianaia SV, Morris JK, Best KE, Santoro M, Coi A, Armaroli A, Rankin J. Long-term survival of children born with congenital anomalies. PLoS Med. 2020;17: e1003356.
Kosho T, Nakamura T, Kawame H, Baba A, Tamura M, Fukushima Y. Neonatal management of trisomy 18. Am J Med Genet A. 2006;140: 937–944.
Meyer RE, Liu G, Gilboa SM, et al. Survival of children with trisomy 13 and 18. Am J Med Genet A. 2016;170A: 825–837.
Schuler R, Bedei I, Oehmke F, Zimmer KP, Ehrhardt H. New challenges with treatment advances in newborn infants. Children. 2022;9(2): 236.
Ito Y. Perinatal care for severe congenital pulmonary airway malformation. In: Congenital Cystic Lung Disease. 2020. p. 39–47.
Janvier A, Farlow B, Barrington KJ. Parental hopes, interventions, and survival of neonates with trisomy 13 and trisomy 18. Am J Med Genet C Semin Med Genet. 2016;172: 279–287.
WHO. Guidelines on optimal feeding of low birth-weight infants in low- and middle-income countries. https://www.who.int/maternal_child_adolescent/documents/infant_feeding_low_bw/en/ [Erişim tarihi: 20 Haziran 2023].
UNICEF. The human milk bank saves the lives of our youngest. https://www.unicef.org/croatia/en/stories/human-milk-bank-saves-lives-our-youngest [Erişim tarihi: 20 Haziran 2023].
University of Zurich. IBME organizes the WHO co-sponsored “International Expert Consultation on the Donation and Use of Human Milk”. https://www.ibme.uzh.ch/en/Biomedical-ethics/NewsArchive/The-first-International-Expert-Consultation-on-the-Donationand-Use-of-Human-Milk-(Human-Milk-Banking)-,-Co-sponsored-by-theWHO-and-organized-by-the-IBME-has-taken-place-in-Zurich-on-July-8.-and-9.-2019.html [Erişim tarihi: 22 Haziran 2023].
Fang MT, Grummer-Strawn L, Maryuningsih Y, Biller-Andorno N. Human milk banks: a need for further evidence and guidance. Lancet Glob Health. 2021;9(2): e104–e105.
Alparslan Ö, Bozkurt G. Investigating the relationship between the opinions of mothers with infants in intensive care unit on human milk banking and their religious attitudes. Int Sci Voc Stud J. 2021;4(2): 90–96.
Espina-Jerez B, Romera-Álvarez L, de Dios-Aguado M, et al. Wet nurse or milk bank? Evolution in the model of human lactation. Int J Environ Res Public Health. 2022;19(15): 9742.
Keskindemirci G. Anne sütü bankacılığı. Osmangazi Tıp Dergisi. 2020: 30–34.
